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This website is designed for parents of children born with congenital diaphragmatic hernia (CDH).

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Reliable medical information

Hello!

This website is designed for parents of children born with congenital diaphragmatic hernia (CDH).

The content on this website will be particularly useful for parents whose child has been diagnosed with CDH before birth.

When parents are told their unborn child has CDH, they need as much reliable information as possible.

We invite you to explore the content of this website where you will find advice and practical guidance about CDH.

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Congenital Diaphragmatic Hernia

General information

CDH is an anatomical defect of the thin muscle that separates the chest from the abdominal cavity.

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Diagnosing

CDH is most commonly diagnosed at the routine mid-pregnancy ultrasound scan (“anomaly scan”).

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Prenatal treatment

In the case of a severe diaphragmatic hernia, the newborn's chance of survival can be doubled.

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Giving birth to a baby with CDH

The best way to complete the pregnancy is by natural childbirth.

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Postnatal treatment

The condition of the newborn must be sufficiently stable to allow a safe hernia repair surgery.

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Complications

CDH is an anatomical abnormality that affects three very important systems for human life.

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Reherniation

The risk of recurrence applies to all hernia cases, regardless of the size of the defect or the patch used.

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Where to seek help?

The most suitable center is a highest-level (tertiary) referral hospital.

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Congenital Diaphragmatic Hernia

About us

The content on this website is intended for parents of children with prenatally diagnosed CDH. Our aim is to provide support to parents seeking reliable information about CDH and the management of this disorder.

You will find here some essential information about CDH, how it is diagnosed and what are available treatment options.

We hope this website is informative and a useful resource for you.

We are here for you. To help us improve our website, please send us your feedback by email or using the contact form in the Contact Us section.

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All you need to know about CDH

Informacje ogólne wrodzona przepuklina przeponowa
Informacje ogólne wrodzona przepuklina przeponowa
Informacje ogólne wrodzona przepuklina przeponowa
General information
What is CDH?

Congenital diaphragmatic hernia (CDH) is a birth defect that occurs when a baby’s diaphragm – a thin sheet of muscle that separates the abdomen from the chest.

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General information
Prognosis

The hole in the diaphragm must be repaired surgically within the first few days of the baby’s life. The displacement of abdominal organs into the chest, however, presents a serious problem.

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General information
Types of CDH

he anatomical abnormalities of the diaphragm due to CDH include herniation, eventration (outpouching of an abnormally thin part of the diaphragm into the chest cavity) and complete agenesis (absence) of the diaphragm.

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Diagnosing
Ultrasound scan

CDH is most commonly diagnosed at the routine mid-pregnancy ultrasound scan (“anomaly scan”).

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Diagnosing
Genetic testing

The great majority of babies with CDH have so-called isolated defects. This means that the baby has no other anomalies.

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Diagnosing
Magnetic Resonance Imaging (MRI)

You may be referred for additional MRI scans.

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Diagnosing
Assessment of CDH severity

As soon as CDH is picked up on a prenatal ultrasound scan, a perinatal specialist practitioner, with experience in the ultrasound evaluation of CDH, will measure the size of the lung in the chest cavity.

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diagnostyka wrodzona przepuklina przeponowa
diagnostyka wrodzona przepuklina przeponowa
diagnostyka wrodzona przepuklina przeponowa
diagnostyka wrodzona przepuklina przeponowa
leczenie prenatalne wrodzona przepuklina przeponowa
leczenie prenatalne wrodzona przepuklina przeponowa
leczenie prenatalne wrodzona przepuklina przeponowa
leczenie prenatalne wrodzona przepuklina przeponowa
Prenatal treatment
FETO procedure

FETO procedure (Fetoscopic Endotracheal Occlusion) involves the placement of a balloon (about 2 cm in size) into an unborn baby’s airway.

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Prenatal treatment
Is FETO surgery safe?

Like any other medical procedure, FETO procedure (fetoscopic endotracheal occlusion) as well as the procedure of fetoscopic puncture and removal of the endotracheal balloon from the baby’s airway can be associated with complications.

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Prenatal treatment
When will the balloon be removed from the airway?

The balloon remains in the unborn baby’s airway during several weeks.

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Prenatal treatment
FETO surgery

FETO is a high-precision fetal therapy procedure.

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Giving birth to a baby with CDH
What is the best way to give birth?

The best way for both the pregnant woman and the unborn baby to complete the pregnancy is by natural childbirth.

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Giving birth to a baby with CDH
What will happen to the newborn after birth?

The birth should take place in a center that has adequate medical facilities to offer appropriate care for the newborn.

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poród dziecka wrodzona przepuklina przeponowa
poród dziecka wrodzona przepuklina przeponowa

Do you have any questions?

Contact us by e-mail

redakcja@przepuklinaprzeponowa.pl

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